Why is it so important?

Why is it so important???  What is it about P4P that means so much??????

I need help dealing with pain like this....the nearest group is over 300 miles away......

I am going to bow to the "Great Keith Orisini," and use his letter to friends and family....and bosses...and the like.......

http://www.rsdhope.org/loved-ones--friends.html

I have a chronic pain disorder that takes your breath away--I have RSD.....the pain, that is the kind that would take your breath away and then some.....if you ever want to find out what RSD feels like, as Keith Orisini (http://www.rsdhope.org/ ) writes, drain your affected limb--in my case, my leg, of blood, and refill it with lighter fluid, light a match, and drop it, and leave it lit, 24/7, with no breaks.

But with him, there is one thing I agree on, that I hate!!!

 "Gee, it must be nice to not have to work and just sit home all day". If I thought they were really interested in a reply to that ridiculous statement I would tell them that having RSD and/or other CP Diseases, however severely you have it, is much more work than any full-time job! Plus, we don’t get to call in sick, get vacation days, and our work day is 24 hours long, 7 days a week! Now understand that quite a few RSD patients (also known as RSDers) and CP patients have other diseases as well as RSD, such as Fibromyalgia, Spinal Stenosis etc., and that some RSDers have RSD in one limb while for others it is more. Some have less movement while others have quite a bit. Some take only a few medications and some take quite a lot. I myself take a little over a total of 20 pills a day (not different ones, but altogether).

Contrary to some people's opinions taking a pile of medications does not make us ""druggies". A "druggie" is maybe someone's idea of a person who takes drugs for recreation. A pain patient is someone who takes medication because he/she has no choice and who probably cannot fathom someone who takes narcotics for "fun and/or recreation“!
 Another strange symptom that has to be factored in to our daily lives is that many are bothered by vibrations or noise, and for a small percentage, it can actually make the pain skyrocket!

I feel like I have the hearing of a dog.....every month, I eagerly await the package from Amazon that has my earplugs so that I can do things like go grocery shopping without vomiting on the floor or collapsing in exhaustion.

"Sir, I have to go home, the thunder is causing me great pain and the strong wind blowing is hurting me as well." Oh yeah, they would love that. Sorry I can't come to your birthday party because there will be too many people having fun and enjoying themselves and making noise.

Or calling the sheriff because the normal sounds of my new upstairs neighbors (the beasts moved out, it turns out) make when they walk across their floor--that they are allowed to make and that I probably make when I walk across   the floor.

"Must be nice to sit at home all day...."  No, asshole, I miss my nursing job more  than life itself.  And this pain takes no breaks," as Mr Orisini points out, "no cigarette breaks, no lunch breaks, no 2-4 week vacations per year, so piss up a rope, I'd rather work, thank you,"




Personally, I usually say that I feel like people are experimentimennting with different types of acid on human skin, and I am the gineua pig........and my family is being threatened if I don't cooperate.  As for the allydonynia, I bow to Mr. Orisini.....


ttp://www.rsdhope.org/loved-ones--friends.html