No one stopped by and asked if this was okay for one......
What this was all about......This was just a before and after story....before life before RSD and after RSD,
and with the hell on earth I gotta tell ya, I'd pick a whole bunch of of different diseases. This one takes my breath away....
You can see a good description to the right, and RSD'rs as we call our selves, tend to call it "CRaPS," or CRAPS, so it's a shitty disorder to have. Essentially your sympathetic & parasympathetic nervous systems are at war, and your nerves are constantly firing, firing, firing. firing....and you cant make it stop........
IT'S THE NERVE PAIN FROM HELL!!!!!
And the crowd it attracts.......
RSD sure is one lousy rotten sucky disease if we're gonna sit around the stools....
I don't recommend doing that....
It will attract a crowd of riff raff you don't want nothing to do with......
Oh hell, I say nothing........
If my neighbors knew what was in my apartment, let's just say I would't have to worry about housework. But I choose to do my own housework.
R eflex
S ympathetic
D ystrophy
otherwise known as
C omplex
R egional
P ain
S yndrome
Then God picked another, co-existing disesase to have right along with RSD, like that wasn't bad enough????????????
I'm trying to be a lady here, but for the love of God??????????????? You have got to be kidding??????????????????? I am tired enough from being in constant, unrelenting pain, and now I am supposed to toWANT TO take on this crap?
Not a freaking chance in hell!!!!!!!!! I wasn't going to take that crap on.....
Not to mention--uhh....what about the fact that I am not going to have the energy for
BEFORE RSD AND ME SHOWED UP
I would do anything in in my power to take the pain away............
I am sick to death of of it. Just when I think the pain has taken my breath away, it takes it away again......
And there's not a pill that is being made right now, there's not a single thing you can do at one single time that is going to take it all away---> the trick is realizing that using a mixture of things: that is what helps intractable pain;
Not one single modality.
Then God picked another, co-existing disesase to have right along with RSD, like that wasn't bad enough????????????Then God picked another, co-existing disesase to have right along with RSD, like that wasn't bad enough????????????
MYALGIC ENCAPHALOMYELITIS
What IS Myalgic Encaphalomyelitis???????
IT IS MORE THAN CHRONIC FATIGUE SYNDROME!!!!!!!!
ME is described as “an acquired neurological disease with complex global dysfunctions. Pathological dysregulation of the nervous, immune and endocrine systems, with impaired cellular energy metabolism and ion transport are prominent features. Although signs and symptoms are dynamically interactive and causally connected, the criteria are grouped by regions of pathophysiology to provide general focus.”
Diagnosis begins with assessment of post-exertional neuroimmune exhaustion (PENE), rather than fatigue.
Post-
Exertional
Neuroimmune
Exhaustion
Acceptance for particular disease definitions may come by several different routes. The first, and foremost, is publication.
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So, try having a disease that doesn't even exist by US standards, anyhow.
If I were to pack up and move to Canada, I'd be in luck. http://www.nightingale.ca/index.php?target=home.
Apparently it exists there. What I wouldn't give to have even the $400/visit fot a Skype.....
Right now, it's hard to even walk to the damned mailbox. And CBT is gonna apparently save me......save the fucking day. What a crock of shit. Forgive my pessimism.
Me: 3.5 years ago.......
3.5 years later......
My hair is at least longer, but that is about it.......
Sound like fun????
Throw both those those of those of those in a sack and go for a run.......
I've got one disease where it hurts to be touched........and one that doesn't really exist in the US........
If CBT is so fucking effectiive, why am I supposed to be on oxygen?
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