MORE ON MY NEUROLOGY APPOINTMENT!!!
~~August 12, 2011~~
OMG, I saw the NEUROLOGIST OF ALL NEUROLOGISTS, the absolute king, as far as I am concerned!!!!!!!!!!!
God obviously broke the mold when he created this guy; he is the absolute best!!! So, he starts asking the usual questions: what was the trigger? I told him I'd had hip surgery, and then he said he had a question, as there was something he saw in the notes from my PCP he felt was "unusual." Okay, what's that? I asked having a very good idea exactly what it was. My anxiety was very high by then. He said that the PCP had included everything, all the tests she had run, and a mention of a neuro consult, and even the date; even her name, however, her notes were missing, and there was even notes from a visit with the PCP AFTER the date of the consult that states that I was still in a great deal of pain, and the PCP had then sent the notes, and had just not included the neuro's stuff. He asked how that had gone.
I said it was a total bust, that she'd treated me like a was a complete moron,with a Celcius IQ, and even after I mentioned I had a Master'sin Nursing, and she she had, felt, put me through HELLwith her exam. That I had thrown up on my way out, and if he looked at my PCP's record, she had called in phenergan that afternoon. He asked what sort of exam she'd done, and I had gotten so sick. I said she'd done the reflexes on my knee, ankle, and taken that pinwheel thing, and run it up and down my leg, stuck a NEEDLE(similar to a sewing needle?????) and then been about as rude, patrontizing and disrespectful and downright horrid, IMHO, I told him. I told him that she had said the RSD was due to my "psychological disorder," thus again speaking to me as if I were stupid,, and that neurogenic PAIN is very common in psychological disorders," and at that point I said to him, the "consult" was over, when I reached into my bag, and produced a smaller, pocket copy of the 4th Edition of the Diagnostic and Statistical Manual of Mental Disorders and asked her where I would find RSD." He laughed and asked how she'd responded. I said in the long run, I might well have thrown grease on the fire.
So, the other neurologist, I told him, had then gone on in her notes and said she felt she was “not surewhy I had 'claimed' sooo much pain,but disagreed with her predecessors (My PCP who's PhD is in neurobiology, and the surgeon) that it was RSD/CRPS, and said she wasn't
He looked shocked. "She put you through the fullexam?" he asked me
I nodded, just about in tears. He said he would try, but my comfortlevel would dictate how much of an exam would be done. So, he did okay on the left side, since the RSD isn't really affecting that side. He started to REACH for my right leg, and reflexively pulled away, and as he said, "already looked kinda green around the gills." He immediately backed off.
Not gonna BELIEVE this on what he said next: "Oh, yeah, not RSD? Uh, well I disagree, it is RSD, and I find it unconscionable that with your current level of pain, she even put you through a full exam.
He admitted he gets people in there daily who are trying to fake it, he told me, but you are clearly in way, waytoo much pain to even attemptfor me to even do a full exam, and that he felt there was NO WAY he could even get in a more complete exam until my PAIN was under better control, and that absolutely not a chancewas I faking it, or that it was 'psychologically mediated,' as I said the previous neurologist had suggested.
So anyhow, since most of the tim I have been crashed out since, oh, my Lord, like 4pm--but I slept from noon til then. I'm still in screaming pain, but God, it's just that FINALLY, someone is on my side; and wrote inBIG RED LETTERS: THIS PATIENT HAS RSDand, boy does it feel good, dang it--not to have RSD, but the friggin' validation, for the love of Mike!!! (or whoever.)
But anyhow, a friend made me a gorgeous fleece blanket which FINALLY does not hurt to have on my lap, so I don't freeze, and even though sleep is hard, I got LOTS of it today!!!! Whoa!!! But I might commission my friend to make one more blanket to go under me, so that I will be warm; seeing as how we are having 55-60 degree days in fr
But the neurologist said HE may have to do my pain control for a whole, which is okay, because HE LISTENS, but Idk why he can't just work with my current guy; but this neuro specializes in RSD and I'm the first RSD patient the PM doc has had...idk, we'll wait and see. I can go to 2 capsules in a week of the Zonegran; making it THREE anti-seizure medicines. Better than more narcotics, IMHO. I don't like feeling like a dope.
God obviously broke the mold when he created this guy; he is the absolute best!!! So, he starts asking the usual questions: what was the trigger? I told him I'd had hip surgery, and then he said he had a question, as there was something he saw in the notes from my PCP he felt was "unusual." Okay, what's that? I asked having a very good idea exactly what it was. My anxiety was very high by then. He said that the PCP had included everything, all the tests she had run, and a mention of a neuro consult, and even the date; even her name, however, her notes were missing, and there was even notes from a visit with the PCP AFTER the date of the consult that states that I was still in a great deal of pain, and the PCP had then sent the notes, and had just not included the neuro's stuff. He asked how that had gone.
I said it was a total bust, that she'd treated me like a was a complete moron,with a Celcius IQ, and even after I mentioned I had a Master'sin Nursing, and she she had, felt, put me through HELLwith her exam. That I had thrown up on my way out, and if he looked at my PCP's record, she had called in phenergan that afternoon. He asked what sort of exam she'd done, and I had gotten so sick. I said she'd done the reflexes on my knee, ankle, and taken that pinwheel thing, and run it up and down my leg, stuck a NEEDLE(similar to a sewing needle?????) and then been about as rude, patrontizing and disrespectful and downright horrid, IMHO, I told him. I told him that she had said the RSD was due to my "psychological disorder," thus again speaking to me as if I were stupid,, and that neurogenic PAIN is very common in psychological disorders," and at that point I said to him, the "consult" was over, when I reached into my bag, and produced a smaller, pocket copy of the 4th Edition of the Diagnostic and Statistical Manual of Mental Disorders and asked her where I would find RSD." He laughed and asked how she'd responded. I said in the long run, I might well have thrown grease on the fire.
So, the other neurologist, I told him, had then gone on in her notes and said she felt she was “not surewhy I had 'claimed' sooo much pain,but disagreed with her predecessors (My PCP who's PhD is in neurobiology, and the surgeon) that it was RSD/CRPS, and said she wasn't
He looked shocked. "She put you through the fullexam?" he asked me
I nodded, just about in tears. He said he would try, but my comfortlevel would dictate how much of an exam would be done. So, he did okay on the left side, since the RSD isn't really affecting that side. He started to REACH for my right leg, and reflexively pulled away, and as he said, "already looked kinda green around the gills." He immediately backed off.
Not gonna BELIEVE this on what he said next: "Oh, yeah, not RSD? Uh, well I disagree, it is RSD, and I find it unconscionable that with your current level of pain, she even put you through a full exam.
He admitted he gets people in there daily who are trying to fake it, he told me, but you are clearly in way, waytoo much pain to even attemptfor me to even do a full exam, and that he felt there was NO WAY he could even get in a more complete exam until my PAIN was under better control, and that absolutely not a chancewas I faking it, or that it was 'psychologically mediated,' as I said the previous neurologist had suggested.
So anyhow, since most of the tim I have been crashed out since, oh, my Lord, like 4pm--but I slept from noon til then. I'm still in screaming pain, but God, it's just that FINALLY, someone is on my side; and wrote inBIG RED LETTERS: THIS PATIENT HAS RSDand, boy does it feel good, dang it--not to have RSD, but the friggin' validation, for the love of Mike!!! (or whoever.)
But anyhow, a friend made me a gorgeous fleece blanket which FINALLY does not hurt to have on my lap, so I don't freeze, and even though sleep is hard, I got LOTS of it today!!!! Whoa!!! But I might commission my friend to make one more blanket to go under me, so that I will be warm; seeing as how we are having 55-60 degree days in fr
But the neurologist said HE may have to do my pain control for a whole, which is okay, because HE LISTENS, but Idk why he can't just work with my current guy; but this neuro specializes in RSD and I'm the first RSD patient the PM doc has had...idk, we'll wait and see. I can go to 2 capsules in a week of the Zonegran; making it THREE anti-seizure medicines. Better than more narcotics, IMHO. I don't like feeling like a dope.
But lastly, I finally am not feeling embarrassed with this doctor, to admit that the RSD, how hard it is to take a freaking shower!!! I am relatively new to “Medicare guidelines” on home health, but I feel like I could use the help to take a shower, as humiliating as it has previously been to admit; I NEEDthe help, as showers are now a 3+ hour nauseatingly painful affair, and I am comfortable enough with him to ask for the help.
As for being “home bound?” How many need to ask that question?
But oh, I am SOOO RELIEVED!!! It couldn't have gone any better!!! Big load off!!!!
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