Been coming down from lots of stress, I suppose....
Otherwise, I am always waking up with a sore jaw from grinding my teeth which is either a "stress thing" or it's a "pain thing," and we're pretty much on top of the pain thing; and so I can even crash out from total exhaustion; but still wake up catching myself grinding, or with a chipped tooth from grinding my teeth...
My head throbs, my jaw aches from the grinding~~my dentist makes rubberized night guards at no charge because I have cracked through the plastic ones, and I lose them...terrible as it sounds.
I have an appointment onn the 4th..can't wait to get another.....
Dermatology on the 30th, Praise God. I had to go to go to the ER to get diflucan because of a potential increase in my Teg--but my PCP can't pick up the phone????? No, suffer for 2 weeks with an open infection that would put me in the hospital by the time dermatology sees me cuz someone can't be troubled to pick up the phone???
Then flack from the ER....do you even have a PCP???
What? You deaf??? Gave up her name when I came in; she just refuses to treat!!!!! Gone are days of little house on the prarie....
But them ain't gettin' paid in apples and chickens either.........
They deserve to, but they're not....guess they think I am a 'tard too.....
I went through hell on earth also with ATT and Dell's "Customer Service" that I've been running non-stop headaches....
Doesn't help the headache department!!!
Jenna: Unplugged-YOU live with RSD!!!!
I live with the breath-taking pain of RSD/CRPS (in my right leg and left foot) and the pain causes you to constantly feel as if you've been on the spin cycle....
Wednesday, September 28, 2011
Sunday, September 25, 2011
My Mom's Retirement = Good for her; but is it good for me?
Mom, I love you with all my heart;
I hope this you certainly know by now...
I know you want to help;
good lies only in your heart,
this I also know by now,
after thirty-seven years on this earth with you
I love you now more than ever;
And I say this from a place of deep abiding love,
spend what time you have left with Nick
spend it with Nick....you didn't retire for me,
you retired for yourself, after a lifetime of hard work...
You've earned the right to relax,
not to come up and clean my house,
and bring me groceries, help me...
Because when you do these things
you are not helping me to be the proper 37 year old.
A 7 year old, maybe, but not 37.
I know this isn't easy to hear,
all your hard work with only love in your heart...
But showing me love would be with or without
a disability, which shouting it in the store
was quite the ultimate humiliation,
though I know you didn't mean it that way,
it is how it felt~~I call it as I see it
You are the one who taught me that....
But take your retirement for you;
don't devote all your time to me....
You haven't even sold the house~
So don't count the chickens before the eggs are hatched
or however the saying it goes~ I hope you know
what I mean, and that I only say this because I love you...
I hope this you certainly know by now...
I know you want to help;
good lies only in your heart,
this I also know by now,
after thirty-seven years on this earth with you
I love you now more than ever;
And I say this from a place of deep abiding love,
spend what time you have left with Nick
spend it with Nick....you didn't retire for me,
you retired for yourself, after a lifetime of hard work...
You've earned the right to relax,
not to come up and clean my house,
and bring me groceries, help me...
Because when you do these things
you are not helping me to be the proper 37 year old.
A 7 year old, maybe, but not 37.
I know this isn't easy to hear,
all your hard work with only love in your heart...
But showing me love would be with or without
a disability, which shouting it in the store
was quite the ultimate humiliation,
though I know you didn't mean it that way,
it is how it felt~~I call it as I see it
You are the one who taught me that....
But take your retirement for you;
don't devote all your time to me....
You haven't even sold the house~
So don't count the chickens before the eggs are hatched
or however the saying it goes~ I hope you know
what I mean, and that I only say this because I love you...
Accepting Help
My birthday is coming up soon, hard to believe I'll be 37....
So much has happened in the last year, I couldn't begin to sum it up...I wouldn't know where to start. I feel like I've been on the spin cycle, and whenever I get my head out for air, it gets shoved back in....and on and on and on.
It's only 8pm and it feels like 11pm...and now I feel like I could just sleep for hours and hours.
I have no appetite, but slammed some phenergan and forced myself to eat. Meds don't work if there's nothing for them to work with.
I got approved for a caregiver, and someone to help with showers, and to help with shopping and all the stuff no one has been, and no one will. It's gonna be a challenge learning to accept it.
I know I can, I know~~I love this, and it's what I need. But scary at the same time...
So much has happened in the last year, I couldn't begin to sum it up...I wouldn't know where to start. I feel like I've been on the spin cycle, and whenever I get my head out for air, it gets shoved back in....and on and on and on.
It's only 8pm and it feels like 11pm...and now I feel like I could just sleep for hours and hours.
I have no appetite, but slammed some phenergan and forced myself to eat. Meds don't work if there's nothing for them to work with.
I got approved for a caregiver, and someone to help with showers, and to help with shopping and all the stuff no one has been, and no one will. It's gonna be a challenge learning to accept it.
I know I can, I know~~I love this, and it's what I need. But scary at the same time...
SELF-APPOINTED MODERATORS
You know, it seems we
have some self-appointed people here who are decideding they have
nothing to do with your time rather than stand in pass judgement on
the rest of us.
To decide who it's
okay for some of us to be "friends" with and who it's not.
To put up very telling comments on articles .....Telling about YOU,
not the author....Grow up, girls.
For those of you who don't like an article, or hate the author....don't read it!!!
You blame me for
making this community what it is...if it's a look in the trash can,
rather than perhaps a look in the mirror is in order.....
This was
once upon a time a "support network," but
a few, immature,
self-appointed mediators
have turned it into a place where no one knows who to trust, where no
one knows who they are "allowed" to be friends with, and
are deccimating their lists because you--you know exactly
who
you are--have taken it upon yourselves to decide what this site and
what is not.
People don't want to
hang out here anymore~~
It's become a
stressor, not a helper, no longer a support. You have your cliquish
little communities, and perfectly innocent people are falling victim
to your nastiness, falling victim to your hideous games. People have
specifically told me that you are setting "the fear of God"
into them just about, and that was why I was removed from their
friends' list-->they no longer knew I had anything to do with w=a
! Not because of me!!! Or anything I have done....
I used to enjoy site
messages. Then grew to dread them and never know what friends are
going to say to me because of something fed to them by 2 nasty old
bitties with nothing better to do would have to say or doll
A word of advice:
Get a cat~if it would
put up with you and not pee on the floor, in your houseplants, or on
you.
Buy a houseplant
if you can keep it alive.....
Get that thing called
a life unless you've chased everyone else away.
I'm grateful to say I
have friends beyond this place, despite what you think of me or
not...My page was private, yet someone who should have no access
seems to know I am finding "healing in my journals." How
would you know unless you have people doing your dirty work you
aren't woman enough to do yourself.
And V2, for someone
who said they swore off leaving me alone, you have a lot to say about
what a write in my own thoughts; and in my articles. I'd hardly call
that leaving me alone.
So I leave YOU--go
404 as they say by choice and at peace with it; I got a nice gift
from my brother, and so much from my friends. Much to look forward to
with my family and my doctors and this thing called hope.
But no thanks to you.
I found it inside
myself.
P4P is not the only
“support site” out there; and to think so would be arrogance
typical of the main self-appointed moderators that have turned this
formerly decent site into warring factions where people are
apparently afraid to even have certain people listed on their
“friend's” list,
rather than deal with the 'fallout' of exercising their right to what
is listed in the Bill of Rights as “The Right to Free Speech-on
a website where I am supposed to at least be able
to speak my mind!!!!
If we think P4P is the only “support site....” it would be like saying we are the only ones who have RSD/CRPS if our...
But in terms of that,
the arrogance of the two-facedness in the infants
who are so publicly cat-fighting are only dragging P4P
down with themselves and through the mud, while claiming to “love
this site.” If they did, they would go 404 and never
return...that
is the only way to make it look better now.
I left because of
fever-pitch of drama...and my health couldn't take it!
But it has caused me
to realize these sites are a dime a dozen, much all the same.
Personality
Disordered, and drama run rampant, and the people I grew up made my
life hell.
Not responding drives
them crazy. That is how I respond now; and it drives them over the
moon......and when you've got their number, that too, also makes them
more insane than they already are.....
When the drama
presents itself—and that is what these two are up to with
practically sitting at the computer, posting to make everyone up in a
tizzy with their stupid posts. Then, not being woman enough to leave
up the original post that made the whole problem in the first place,
and pulling them down—that's right, not woman
enough!!!
Not responding drives
them crazy. That is how I respond now; and it drives them over the
moon......and when you've got their number, that too, also makes them
more insane than they already are.....
When the drama
presents itself—and that is what these two are up to with
practically sitting at the computer, posting to make everyone up in a
tizzy with their stupid posts. Then, not being woman enough to leave
up the original post that made the whole problem in the first
place, and pulling
them down—that's right, not woman
enough!!!
Girls, you are
in the “big girls” sandbox, whether or not you deserve to be.
Grow up and act like you at least belong there.
Don't worry about me
coming back under “Jenna McK” or any name; I am adult enough to
come back for any of this stupid backbiting and stupid childish
games—why would I open another
account here—let alone under multiple
accounts as some have done—despite your crap, I have
managed to make a few friends along the way.
Let us be clear on
one thing; no-make that two: I did not go “404” because anything
yo have done—save the volume of drama; you certainly don't deserve
credit for that
But wait and be clear
on this:
• You need to get
some help~right quick before you or someone else gets hurt:
physically or
emotionionally........
• Personality
disorders are to be taken seriously:
◦ Cluster B
Personality Disorders
Antisocial
Personality Disorder is
more commonly diagnosed
amongst
men. They
are at higher risk for anxiety disorders, substance abuse,
somatization disorders, and
pathological gambling.
Borderline
Personality Disorder
is
associated with a risk for substance
abuse, eating
disorders (especially bulemia), and PTSD. Suicide is completed in8-10% of patients with BPD (far higher than most mental health disorders).
Histrionic
Personality Disorder is
associated mostly with somatoform disorders.
Narcissistic
Personality Disorder
is
at high risk for anorexia and bulemia......as
well as depression
The
most current literature shows thats that people, particularly with
BPD, HPD, and NPD, in attempts to shine the lights on themselves will
show up on the online sites with “horrifying medical histories to
shine the lights on themselves....and tell stories of “courage and
dignity” in the faces of what often woud have spelled death for
most~~tests of true courage in the faces of death for anyone else.
And
these are often the ones that start the battles...and they may win
that battle, but they lose the war. They are pretty much on the
phone with each other....waiting to post, and then to pull their
respective posts......
You
have to watch your back for these types.......................
A
word to the wise....I grew up with one.
And I
was the one making P4P look bad?????
I
recall someone making a look at “the man/WOMAN in the mirror.....”
Boooooo
hooooooo!!!!!!!'
Now wouldn't that suck if our self-appointed moderators good hard at themselves?
I am
totally done with online websites: they have different names; sites;
but it's all the same in the long run: you're stuck with the same
backbiting and BS, passive-aggressive crap you started out with......
NUTS, is
just plain nuts. Especially when your doc is threatening you with
hospitalization because you just feel like you have to keep
responding to the constant barrage of 30+ emails in your
inbox~curiousity killed the cat(fighting) you have to remind
youself.
At least
my doc is threatening with medical hospitalization....not
psychiatric!
Saturday, September 24, 2011
Drama is Out there, if You are Looking
Support pages? How supportive?
I
have had almost nothing but nightmarish experiences with these online
"support pages," and I almost landed myself in the hospital
with the last one....fucking insane that I was going to give up some
a new Lazy-Boy recliner men's size that I can sleep in on occassion
(not all
the time),
for a cheap laptop computer so I could post on one of those
sites.
P4P is only one example.....there are scads of them out there--DS, Inspire, you name it, it's probably got a title out there...
And several "BFF" self-appointed drama queens/kings of the site....the Borderline Personality Disordered and Histrionic Personality Disordered type (minor in psych nursing) seems to be the ones running rampant on each site...should be running a personality disordered sites...and each week it's like they publish a list of people you are/are not allowed to be "friends" with.
P4P is only one example.....there are scads of them out there--DS, Inspire, you name it, it's probably got a title out there...
And several "BFF" self-appointed drama queens/kings of the site....the Borderline Personality Disordered and Histrionic Personality Disordered type (minor in psych nursing) seems to be the ones running rampant on each site...should be running a personality disordered sites...and each week it's like they publish a list of people you are/are not allowed to be "friends" with.
War
after war....and it churns my stomach..... I get a migraine thinking about it all--such stupid bullshit...and rarely whew....I'm relieved it's over....NOT gonna start my own site~don't want to mediate the drama and make sure everyone is under psychiatric care where's appropriate....
I cringe....
My
doctor ordered
me off,
and I ignored him...under threat of medical hospitalization and my friend
confiscating my computer....I gave in and went "404" (aka,
"gave in to the drama and deleted my accounnnnnnnnn"
Then
the ones who don't follow the rules that should
be there but are not:
...they use the sites to promote self-authored books;
promote products; like some things a friend recieved in an email from P4P website (why I removed the link at www.physiciansforpatients.com ):
"NOPALEA
produced by Trivita. Nopalea is Cactus juice that has amazing anti
inflammatory properties, anti oxidents, and powerful molecular
restorative properties..."
I
get the RSDSA newsletter this is claimed to be in, and no
mention.....
Drama
and histrionism (aka, histrionics) runs rampant on all of them. God help you should you
cross one. Question one. And they have medical histories that would
make Jesus Christ Himself cringe....but they do it "with such
'courage, grace, and dignity'...and intolerance, hatred, and
impatience towards others."
Kinda backwards, don'tcha think????
I do.
I dumped my membership to the latest one. I don't care if the latest battle is over...for now...the wars rage on.
Kinda backwards, don'tcha think????
I do.
I dumped my membership to the latest one. I don't care if the latest battle is over...for now...the wars rage on.
And
those of us with limited health; we are having to pick our
battles/wars...is an online website one you want?
I have sworn them off. I am done, finished....before they do me in
I will write here. I am the Queen, but I always allow, and welcome comments from readers....My blog is my support network; those who respond will be my supporters; I have others who aren't posting here, but are still supporters.
I have sworn them off. I am done, finished....before they do me in
I will write here. I am the Queen, but I always allow, and welcome comments from readers....My blog is my support network; those who respond will be my supporters; I have others who aren't posting here, but are still supporters.
And
to you, I tip my hat.
Your
own trials and suffering, you are supporters. And we all go marching
on....together in this bullshit...we have each other, and that's
enough for me
God
Bless each of you....
What is RSD like---my open letter TO RSD:
My Dearest RSD,
I wish like hell you'd leave me alone.....
I am tired of the burning pain in my leg and both feet. I am tired, at age 36, of feeling like I've been to hell and back, and back to hell and stayed longer with each "flare." I am tired of dreading each flare.
I have already grown tired of the migraines and helllish "syndromes" that grow with you; I've done nothing to deserve this.......nothing to put my face on a
"Wanted Poster" that bears either of these likenessesses on them; and the pain
I wish like hell you'd leave me alone.....
I am tired of the burning pain in my leg and both feet. I am tired, at age 36, of feeling like I've been to hell and back, and back to hell and stayed longer with each "flare." I am tired of dreading each flare.
I have already grown tired of the migraines and helllish "syndromes" that grow with you; I've done nothing to deserve this.......nothing to put my face on a
"Wanted Poster" that bears either of these likenessesses on them; and the pain
agony, horrible burning pain that goes with it;
"Foreign oil" is on his mind...not the "Spending and re-election" on
dead soldiers that make up his likeness... his, no room for much else
Where's some lung cancer when you need it?????
Watch him suffocate to death?
Not painful enough!!!!!
RSD....instead of bothering me....why not them????
Not that their minds could handle more than one thing at a time; and election at all is what, or we need to ask ourselves; what any of us were thinking when we voted for him.....
We all screw up--this was a big one!!!
God forgive me, and take away the RSD; and give me some peace, and us all some justice...let them suffer~in the way only RSD can make you suffer!
Leave the rest of us in peace!
Friday, September 23, 2011
Support pages? How supportive?
I have sooner or later had almost nothing but nightmarish experiences with these online "support pages," and I almost landed myself in the hospital with the last one....fucking insane that I was going to give up some a new Lazy-Boy recliner men's size that I can sleep in on occassion (not all the time), for a cheap laptop computer so I could post on one of those sites.
P4P is only one example.....there are scads of them out there--DS, Inspire, you name it, it's probably got a title out there...
And several "BFF" self-appointed drama queens/kings of the site....the Borderline Personality Disordered type seems to be the ones running rampant on each site......and each week it's like they publish a list of people you are/are not allowed to be "friends" with.
Drama and histrionism runs rampant on all of them. God help you should you cross one. Question one. And they have medical histories that would make Jesus Christ Himself cringe....but they do it "with such 'courage, grace, and dignity'...and intolerance, hatred, and impatience towards others."
Kinda backwards, don'tcha think????
I do.
I dumped my membership to the latest one.
I have sworn them off.
I will write here. I am the Queen, but I always allow, and welcome comments from readers.....
P4P is only one example.....there are scads of them out there--DS, Inspire, you name it, it's probably got a title out there...
And several "BFF" self-appointed drama queens/kings of the site....the Borderline Personality Disordered type seems to be the ones running rampant on each site......and each week it's like they publish a list of people you are/are not allowed to be "friends" with.
Drama and histrionism runs rampant on all of them. God help you should you cross one. Question one. And they have medical histories that would make Jesus Christ Himself cringe....but they do it "with such 'courage, grace, and dignity'...and intolerance, hatred, and impatience towards others."
Kinda backwards, don'tcha think????
I do.
I dumped my membership to the latest one.
I have sworn them off.
I will write here. I am the Queen, but I always allow, and welcome comments from readers.....
Subscribe to:
Posts (Atom)


