Wednesday, September 28, 2011

Been coming down from lots of stress, I suppose....

Otherwise, I am always waking up with a sore jaw from grinding my teeth which is either a "stress thing" or it's a "pain thing," and we're pretty much on top of the pain thing; and so I can even crash out from total exhaustion; but still wake up catching myself grinding, or with a chipped tooth from grinding my teeth...

My head throbs, my jaw aches from the grinding~~my dentist makes rubberized night guards at no charge because I have cracked through the plastic ones, and I lose them...terrible as it sounds.

I have an appointment onn the 4th..can't wait to get another.....

Dermatology on the 30th, Praise God.  I had to go to go to the ER to get diflucan because of a potential increase in my Teg--but my PCP can't pick up the phone?????  No, suffer for 2 weeks with an open infection that would put me in the hospital by the time dermatology sees me cuz someone can't be troubled to pick up the phone???

Then flack from the ER....do you even have a PCP???

What?  You deaf???  Gave up her name when I came in; she just refuses to treat!!!!!  Gone are days of little house on the prarie....

But them ain't gettin' paid in apples and chickens either.........

They deserve to, but they're not....guess they think I am a 'tard too.....


I went through hell on earth also with ATT and Dell's "Customer Service" that I've been running non-stop headaches....

Doesn't help the headache department!!!

Sunday, September 25, 2011

My Mom's Retirement = Good for her; but is it good for me?

Mom, I love you with all my heart;
I hope this you certainly know by now...
I know you want to help;
good lies only in your heart,
this  I also know by now,
after thirty-seven years on this earth with you
I love you now more than ever;

And I say this from a place of deep abiding love,
spend what time you have left with Nick
spend it with Nick....you didn't retire for me,
you retired for yourself, after a lifetime of hard work...
You've earned the right to relax,
not to come up and clean my house,
and bring me groceries, help me...
Because when you do these things
you are not helping me to be the proper 37 year old.

A 7 year old, maybe, but not 37.
I know this isn't easy to hear,
all your hard work with only love in your heart...
But showing me love would be with or without
a disability, which shouting it in the store
was quite the ultimate humiliation,
though I know you didn't mean it that way,
it is how it felt~~I call it as I see it
You are the one who taught me that....

But take your retirement for you;
don't devote all your time to me....
You haven't even sold the house~

So don't count the chickens before the eggs are hatched
or however the saying it goes~ I hope you know
what I mean, and that I only say this because I love you...

Accepting Help

My birthday is coming up soon, hard to believe I'll be 37....

So much has happened in the last year, I couldn't begin to sum it up...I wouldn't know where to start. I feel like I've been on the spin cycle, and whenever I get my head out for air, it gets shoved back in....and on and on and on.

It's only 8pm and it feels like 11pm...and now I feel like I could just sleep for hours and hours.

I have no appetite, but slammed some phenergan and forced myself to eat. Meds don't work if there's nothing for them to work with.

I got approved for a caregiver, and someone to help with showers, and to help with shopping and all the stuff no one has been, and no one will. It's gonna be a challenge learning to accept it.

I know I can, I know~~I love this, and it's what I need. But scary at the same time...

SELF-APPOINTED MODERATORS


You know, it seems we have some self-appointed people here who are decideding they have nothing to do with your time rather than stand in pass judgement on the rest of us.

To decide who it's okay for some of us to be "friends" with and who it's not. To put up very telling comments on articles .....Telling about YOU, not the author....Grow up, girls.

For those of you who don't like an article, or hate the author....don't read it!!!

You blame me for making this community what it is...if it's a look in the trash can, rather than perhaps a look in the mirror is in order.....

This was once upon a time a "support network," but a few, immature, self-appointed mediators have turned it into a place where no one knows who to trust, where no one knows who they are "allowed" to be friends with, and are deccimating their lists because you--you know exactly who you are--have taken it upon yourselves to decide what this site and what is not.

People don't want to hang out here anymore~~

It's become a stressor, not a helper, no longer a support. You have your cliquish little communities, and perfectly innocent people are falling victim to your nastiness, falling victim to your hideous games. People have specifically told me that you are setting "the fear of God" into them just about, and that was why I was removed from their friends' list-->they no longer knew I had anything to do with w=a ! Not because of me!!! Or anything I have done....

I used to enjoy site messages. Then grew to dread them and never know what friends are going to say to me because of something fed to them by 2 nasty old bitties with nothing better to do would have to say or doll


A word of advice:

Get a cat~if it would put up with you and not pee on the floor, in your houseplants, or on you.

Buy a houseplant if you can keep it alive.....
Get that thing called a life unless you've chased everyone else away.

I'm grateful to say I have friends beyond this place, despite what you think of me or not...My page was private, yet someone who should have no access seems to know I am finding "healing in my journals." How would you know unless you have people doing your dirty work you aren't woman enough to do yourself.

And V2, for someone who said they swore off leaving me alone, you have a lot to say about what a write in my own thoughts; and in my articles. I'd hardly call that leaving me alone.

So I leave YOU--go 404 as they say by choice and at peace with it; I got a nice gift from my brother, and so much from my friends. Much to look forward to with my family and my doctors and this thing called hope.

But no thanks to you.

I found it inside myself.

P4P is not the only “support site” out there; and to think so would be arrogance typical of the main self-appointed moderators that have turned this formerly decent site into warring factions where people are apparently afraid to even have certain people listed on their friend's” list, rather than deal with the 'fallout' of exercising their right to what is listed in the Bill of Rights as “The Right to Free Speech-on a website where I am supposed to at least be able to speak my mind!!!!


If we think P4P is the only “support site....” it would be like saying we are the only ones who have RSD/CRPS if our...

But in terms of that, the arrogance of the two-facedness in the infants who are so publicly cat-fighting are only dragging P4P down with themselves and through the mud, while claiming to “love this site.” If they did, they would go 404 and never return...that is the only way to make it look better now.

I left because of fever-pitch of drama...and my health couldn't take it!

But it has caused me to realize these sites are a dime a dozen, much all the same.

Personality Disordered, and drama run rampant, and the people I grew up made my life hell.

Not responding drives them crazy. That is how I respond now; and it drives them over the moon......and when you've got their number, that too, also makes them more insane than they already are.....

When the drama presents itself—and that is what these two are up to with practically sitting at the computer, posting to make everyone up in a tizzy with their stupid posts. Then, not being woman enough to leave up the original post that made the whole problem in the first place, and pulling them down—that's right, not woman enough!!!

Not responding drives them crazy. That is how I respond now; and it drives them over the moon......and when you've got their number, that too, also makes them more insane than they already are.....

When the drama presents itself—and that is what these two are up to with practically sitting at the computer, posting to make everyone up in a tizzy with their stupid posts. Then, not being woman enough to leave up the original post that made the whole problem in the first

place, and pulling them down—that's right, not woman enough!!!

Girls, you are in the “big girls” sandbox, whether or not you deserve to be. Grow up and act like you at least belong there.

Don't worry about me coming back under “Jenna McK” or any name; I am adult enough to come back for any of this stupid backbiting and stupid childish games—why would I open another account here—let alone under multiple accounts as some have done—despite your crap, I have managed to make a few friends along the way.

Let us be clear on one thing; no-make that two: I did not go “404” because anything yo have done—save the volume of drama; you certainly don't deserve credit for that

But wait and be clear on this:

You need to get some help~right quick before you or someone else gets hurt:
physically or emotionionally........

Personality disorders are to be taken seriously:

Cluster B Personality Disorders

Antisocial Personality Disorder is more commonly diagnosed amongst
men.  They are at higher risk for anxiety disorders, substance abuse, somatization disorders, and pathological gambling.

Borderline Personality Disorder is associated with a risk for substance
abuse, eating disorders (especially bulemia), and PTSD. Suicide is completed in
8-10% of patients with BPD (far higher than most mental health disorders).

Histrionic Personality Disorder is associated mostly with somatoform disorders.

Narcissistic Personality Disorder is at high risk for anorexia and bulemia......as well as depression




The most current literature shows thats that people, particularly with BPD, HPD, and NPD, in attempts to shine the lights on themselves will show up on the online sites with “horrifying medical histories to shine the lights on themselves....and tell stories of “courage and dignity” in the faces of what often woud have spelled death for most~~tests of true courage in the faces of death for anyone else.

And these are often the ones that start the battles...and they may win that battle, but they lose the war. They are pretty much on the phone with each other....waiting to post, and then to pull their respective posts......

You have to watch your back for these types.......................

A word to the wise....I grew up with one.

And I was the one making P4P look bad?????

I recall someone making a look at “the man/WOMAN in the mirror.....”

Boooooo hooooooo!!!!!!!'

Now wouldn't that suck if our self-appointed moderators good hard at themselves?

I am totally done with online websites: they have different names; sites; but it's all the same in the long run: you're stuck with the same backbiting and BS, passive-aggressive crap you started out with......


NUTS, is just plain nuts. Especially when your doc is threatening you with hospitalization because you just feel like you have to keep responding to the constant barrage of 30+ emails in your inbox~curiousity killed the cat(fighting) you have to remind youself.




At least my doc is threatening with medical hospitalization....not psychiatric!

Saturday, September 24, 2011

Drama is Out there, if You are Looking

Support pages? How supportive?


I have had almost nothing but nightmarish experiences with these online "support pages," and I almost landed myself in the hospital with the last one....fucking insane that I was going to give up some a new Lazy-Boy recliner men's size that I can sleep in on occassion (not all the time), for a cheap laptop computer so I could post on one of those sites.
P4P is only one example.....there are scads of them out there--DS, Inspire, you name it, it's probably got a title out there...
And several "BFF" self-appointed drama queens/kings of the site....the Borderline Personality Disordered and Histrionic Personality Disordered type (minor in psych nursing) seems to be the ones running rampant on each site...should be running a personality disordered   sites...and each week it's like they publish a list of people you are/are not allowed to be "friends" with.

War after war....and it churns my stomach.....  I get a migraine thinking about it all--such stupid bullshit...and rarely  whew....I'm relieved it's over....NOT gonna start my own site~don't want to mediate the  drama and make sure everyone is under psychiatric care where's appropriate....


I cringe....
My doctor ordered me off, and I ignored him...under threat of medical  hospitalization and my friend confiscating my computer....I gave in and went "404" (aka, "gave in to the drama and deleted my accounnnnnnnnn"
Then the ones who don't follow the rules that should be there but are not:
...they use the sites to promote self-authored books; promote products; like some things a friend recieved in an email from P4P website (why I removed the link at www.physiciansforpatients.com ):

"NOPALEA produced by Trivita. Nopalea is Cactus juice that has amazing anti inflammatory properties, anti oxidents, and powerful molecular restorative properties..."
I get the RSDSA newsletter this is claimed to be in, and no mention.....
Drama and histrionism (aka, histrionics) runs rampant on all of them. God help you should you cross one. Question one. And they have medical histories that would make Jesus Christ Himself cringe....but they do it "with such 'courage, grace, and dignity'...and intolerance, hatred, and impatience towards others."

Kinda backwards, don'tcha think????

I do.

I dumped my membership to the latest one. I don't care if the latest battle is over...for now...the wars rage on.
And those of us with limited health; we are having to pick our battles/wars...is an online website one you want?

I have sworn them off. I am done, finished....before they do me in

I will write here. I am the Queen, but I always allow, and welcome comments from readers....My blog is my support network; those who respond will be my supporters; I have others who aren't posting here, but are still supporters.
And to you, I tip my hat.
Your own trials and suffering, you are supporters. And we all go marching on....together in this bullshit...we have each other, and that's enough for me
God Bless each of you....

What is RSD like---my open letter TO RSD:

My Dearest RSD,

I wish like hell you'd leave me alone.....

I am tired of the burning pain in my leg and both feet.  I am tired, at age 36, of feeling like I've been to hell and back, and back to hell and stayed longer with each "flare."  I am tired of dreading each flare.

I have already grown tired of the migraines and helllish "syndromes" that grow with you; I've done nothing to deserve this.......nothing to put my face on a
"Wanted Poster" that bears either of these likenessesses on them; and the pain
agony, horrible burning pain that goes  with it;

"Foreign oil" is on his mind...not the                    "Spending and re-election" on
dead soldiers that make up his likeness...            his, no room for much else

Where's some lung cancer when you need it?????

Watch him suffocate to death?


Not painful enough!!!!!

RSD....instead of bothering me....why not them????

Not that their minds could handle more than one thing at a time; and election at all is what, or we need to ask ourselves; what any of us were thinking when we voted for him.....

We all screw up--this was a big one!!!

God forgive me, and take away the RSD; and give me some peace, and us all some justice...let them suffer~in the way only RSD can make you suffer!

Leave the rest of us in peace!

Friday, September 23, 2011

Support pages? How supportive?

I have sooner or later had almost nothing but nightmarish experiences with these online "support pages," and I almost landed myself in the hospital with the last one....fucking insane that I was going to give up some a new Lazy-Boy recliner men's size that I can sleep in on occassion (not all the time), for a cheap laptop computer so I could post on one of those sites.

P4P is only one example.....there are scads of them out there--DS, Inspire, you name it, it's probably got a title out there...

And several "BFF" self-appointed drama queens/kings of the site....the Borderline Personality Disordered type seems to be the ones running rampant on each site......and each week it's like they publish a list of people you are/are not allowed to be "friends" with. 

Drama and histrionism runs rampant on all of them.  God help you should you cross one.  Question one.  And they have medical histories that would make Jesus Christ Himself cringe....but they do it "with such 'courage, grace, and dignity'...and intolerance, hatred, and impatience towards others."

Kinda backwards, don'tcha think????

I do.

I dumped my membership to the latest one.

I have sworn them off.

I will write here.  I am the Queen, but I always allow, and welcome comments from readers.....