One Thing You'll Always Be Short On: Sleep

I've found that when I got hit with one disorder, and then the other, the one thing I will always be short on, is sleep; and I'm not even touring like a rock star........

And other days, shoot, all I do is sleep; it makes me think: what would have happened if I had kept that baby I had so long ago?  My little Ryan, born so tiny, fought through the NICU at just 1 pound, 14.5 ounces, and 11.75 inches long?

I know this is different--I don't even know what I am fighting---what is making me feel this way....the cardiologist says one thing--she's positive that's the answer, so what''s the solution????  They send me home, and an oxygen company shows up, and now at 36, I feel like a dog--chained to a fence: I'm just missing the collar.

But all I am doing right now is feeling sorry for myself.  A bit of self-pity, some old memories

It does suck sure it does--RSD + ME = RESMDE  But what is the acronym...hmmm, I've been good at this before.  RSD = R eally S hitty D isorder + M

R eally                                               CR(a)PS
S shitty
D isease

+

M
E

=                          (RSD/CRPS)   +  (ME)

MY RSD
But my legs are swollen and painful today.  Slightly more pale on the right, but both are swollen and that is not normal..  Not normal at at all.  I don't knoow if bears calling the neuro today, but we're headed into a weekend, and I can't get   stuck  trying to email Dr. L.,and desperaterately prayinging and hopinng to get an email from him becauase I am now stuck times two....

Migraine!!!! x 3 damned days!!!!!!!!!  I better be able to take  2 dammit or there will be some bloodshed!!!!!! 
To hell with any damned other bullshit--I have been putting a smile on my face
I am finally going to get some relief...........The fiorionol is scheduled for afternoon delivery (whew!), and they said to get up slowly (uh, I have POTS, so, we'll just forget about gettinging up at all if we cannot get up at all..pee first...make  decaff tea, they warned about oxygenation, I said I would wear my oxygen, that it helps anyhow, jam in the earplugs).....There's my tea, oh, what a relief it is!!!!!

Afternoon delivery shows up around 3 or 4, no later........oh, praise GOD!!!!!!!

I told the pharmacy lady I've had this thing for 3 days now!!!!  She asked why didn't I just go to an ER, and I told her I wasn't gonna wait half a day for a shot of Torodol, and a patronizining look from the doctor.  The Fiorionol works just fine, and I sleep it off, and done deal.


Just gotta come up with a good acronym now for ME.

Leave it in comments , and I am happy to hear them!!!