What is RSD/CRaPS?

What is RSD/CRPS, aka "CRaPS"?

RSD is pain like no other,

that will take your breath away,

and then keep taking away

It is a burning, firey,

It is to be ablaze, to feel like one has been branded,

broiled, cauterized without need, char-broiled,

that you are going to combust,

have already been cremated alive,

that your body is in flames,

that you've been incinerated before your death,

you've been reduced to ashes, with one limb;

it feels this way--someone has taken lighter fluid to it and dropped a match,

leaving it to burn, no help, no fire extintuisher,

not anything to put the flames out...

as no one else can see them, not your doctor who is supposed to "treat it,"

can see the flames, the agony, the nauseating pain....

What is allydonyia?

blazing, boiling, breathe fire on your skin,

bristle, your desire to eat up and put out the flame,

fumes, seething, simmerinng, smouldering, tingling,

you yearn to be somewhere else....
you picture yourself somewhere else...

scaldinng on the skin

The slightest touch,

A breeze, a bump, a cross man or woman hurrying

home to work

Accidentially pushing into you

feels like an open, raw wound,

being scrubbed at with wire brushes,

brillo pads, and sandpaper, the hell of RSD

The hell of RSD is also having the sleeping habits

of a cat, and the hearing of a dog,

sending my pain into an intolerable level

that most would not believe;

They ask me what my pain is between one and ten.

I think, "Are you the one who's nuts?"

RSD does not work that way.

It's more like whether or not you want to

commit suicide that day, though you know

that you would never follow-through.

It's how much you are feeling antisocial,

and would you answer the door or not

if the buzzer would sound.

Is your phone on or off, that sort of thing......

RSD teaches you boundaries.

Otherwise, you really would go mad.

And that's half the battle, getting through there........

boil over and burn up,

Enrage and get mad, and over what?

Ask how important it will be tomorrow?

Get on one's nerves, incense, inflame, and infuriate,

Grow irritable and lose one's temper,

Madden, make sore, miff, nettle, offend, outrage, pique,

Raise hell, rankle, rant, rave, and rile,

Ruffle, seethe, steam up, stew, stir up, text, umbrage, vex

With RSD everything seems so easily foragable,

so easily upsetting.

There are so many ups and downs;

I have manic-depression already....

The ups and downsn with RSD

It's like "bipolar on steroids."

The pain--there are many ways to describe this monster

I know as RSD....

Some days I can do it,

other days, I lack the words

thanks in part to my medications.

The worst offenders are not

even the narcotics...

they are the antiseizure medicines....

the "Anti-think" medicine,

Or I also call it the "anti-brain medicine."

And it's not even a joke.

I could take a break, and

re-gain my ability to think....

Just how do you get away from that?

I can take huge doses of narcotics,

and still be able to think, and

it seems so backwards to some;

But not to me....

A lifetime lived in pain,

has at least given me that....

But the RSD gives you a gift of this:

Aching, agony, burning, convulsion, cramping,

hurt, illness, injurt, irritatation, misery, spasm,

throbbing, tormenting, stinging


But it gives you a tolerance for the pain of other problems;
it takes you longer unfortunately to do things
like go to the dentist....
But when you do, short of anxiety,
you don't feel much of the pain that sends others
straight to the pharmacy...




Hell, you have one at home




What I hated the most about RSD was getting diagnosed!!!
I've been told that my bipolar disorder
is responsible for my pain;
that "those with 'psychological disorders' are
the only ones who experience neurogenic pain."
The doctor missed that I hold a MSN,
and pointed to her head, and condesendingly said,
"The same brain chemicals involved in psychological disorders
are also responsible for 'neurogenic pain;' and..."
I cut her off at pass, informed her of my professional background
And said that those of us with psychological disorders are capable
of raising children and having a career....
That pain is hers--she suffers from ignorance.




So I looked up my old neurologist,
who now specializes in....peripheral nerve disorders
and guess what folks??? RSD/CRPS!!!!
Back in his care....
he treats my migraines with what works
(fioricet-without coodeine, thank you!!!)
Finally a ball in my court....
No more bullshit of
"Chronic Pain Syndrome"
http://emedicine.medscape.com/article/310834-overview
http://emedicine.medscape.com/article/310834-overview#a0104
Enough damage has been done, thank you!
I don't need anymore help.....
a pain is something that hurts.....
ache is a prolonged dull pain....
a pain is something that hurts as a consequence of
injury, disease, or emotional disorder

be sore, hurt, pain, pound, smart, suffer, throb, twinge


mental suffering
affliction, agony,
anguish, anxiety,
dispondency, distress,
grief, heartache, hurt,
saddness, shock, suffering, torment,
torture, tribulation.....a prey to grief
accursed, aching, aggravatint, agonizing,
apalling, ackward, bitter, calamatous,

causing pain, caustic, concerned, deplorable,
enough to provoke a saint, envenomed, excruciatiating,
in pain, insufferable, insupportable, not to be borne, not to be endured,
past bearing, unacceptable, unaccommodating, unbearable

That's just for fun!!!!!!
This is just the tip of the iceburg of suffering we go through,
The wrong labels, and I only thank God I have who and what I do.